ESMO Patient Advocates Working Group

The ESMO Patient Advocates Working Group (PAWG) main mission is the optimisation of patient care in Europe and worldwide, the continuous improvement of cancer-specific information and education, the strengthening of patient autonomy and the support of patient rights.

Activities and responsibilities

  • Providing adequate information about cancer, its diagnosis, treatment, palliative care and aftercare
  • Organising meetings where patient organisations and individuals have the opportunity to express their wishes, concerns and requests
  • Interacting with patients to share concerns and experiences and developing action plans for strengthening the role of patients in the oncology community
  • Helping physicians and other healthcare providers to understand the specific needs of individual patients, to enhance the quality of communication and personal interaction
  • Building strong coalitions between patient representative groups, cancer physicians and other healthcare providers in order to improve the quality of cancer care
  • Assisting physicians in obtaining advice from specialists for rare or complex cancer cases

Chair

Committee Members

  • Ana-Maria Forsea, Romanian Skin Cancer Foundation, Romania
  • Hans Keulen, Chordoma Foundation, The Netherlands
  • Ian Banks, European Men’s Health Forum (EMHF), Ireland
  • Jan Geissler, CML advocates Network, Germany
  • Kathi Apostolidis, European Cancer Patient Coalition (ECPC), Greece
  • Kathy Oliver, International Brain Tumour Alliance (IBTA), UK
  • Markus Wartenberg, Sarcoma Patients EuroNet (SPAEN), Germany
  • Vlad Voiculescu, European Cancer Patient Coalition (ECPC), Romania
  • Ananda Plate, Myeloma Patients Europe (MPe), Brussels