This weekend workshop looked at the research potential of cancer patient advocacy networks, the different types of research that patient networks can drive and what it takes to do this successfully. This ESMO Workshop was also an excellent opportunity for networking and exchange between cancer umbrella groups.
The ultimate purpose of health care is to benefit patients. Today, social media allows us to reach patients directly in increasing numbers. This makes it possible to learn from the primary data source – the patients themselves – about what patients need and want, ultimately generating data that helps to target healthcare interventions and provisions.
Cancer patient advocacy networks thereby offer enormous potential as they connect and have access to patients sharing the same condition.
View the slide presentations from the workshop Download the report
- the concept of social networks, their potential and how to leverage it in the research context
- different research tools to turn anecdotes into evidence and how to use that evidence for advocacy
- how can patient networks drive clinical research in Europe?
Weekend workshop for patient advocates: Friday evening until Sunday afternoon.
Download the programme
A limited number of travel grants were available to support patient advocates’ participation.
Each grant was worth a reimbursement of travel costs up to a maximum of 200 EUR (reimbursement after the event).
The workshop was held at the Renaissance Brussels Hotel
Rue du Parnasse 19
Brussels, 1050 Belgium