European Cancer League
The Association of European Cancer Leagues (ECL) is a non-profit, pan-European umbrella organisation of national and regional cancer societies. Located in Brussels, ECL provides an exclusive platform for members to collaborate with their international peers, primarily in the areas of cancer prevention, tobacco control, access to medicines and patient support, and creates opportunities to advocate for these issues at the EU level.
European Cancer Patient Coalition
The European Cancer Patient Coalition (ECPC) is proud to be the biggest European cancer patient organisation, supporting and speaking up for more than 10 million cancer patients across Europe and beyond. Established in 2003, the ECPC is the voice of the European cancer patient community, uniquely representing the interests of all cancer patient groups, advocating for the rarest to the most common cancers. With over 400 members, the Coalition works for a Europe of equality, where all European cancer patients have timely and affordable access to the best treatment and care available, throughout their life. The ECPC believes that cancer patients are the most important partners in the fight against cancer and against all the cancer-related issues affecting the society. ECPC’s mission is to empower European cancer patients so they are recognized as co-creators of their own health.
The European Breast Cancer Coalition
EUROPA DONNA – The European Breast Cancer Coalition is an independent non-profit organisation whose members are affiliated groups from countries throughout Europe. The Coalition works to raise awareness of breast cancer and to mobilise the support of European women in pressing for improved breast cancer education, appropriate screening, optimal treatment and increased funding for research. ED has 47 member countries.
International Brain Tumour Alliance
The International Brain Tumour Alliance (IBTA) is a global network founded in 2005 as a dynamic worldwide community for brain tumour patient organisations and others involved in the field of neuro-oncology. The IBTA brings together experience and expertise from all over the world to enhance the well-being and quality of life of brain tumour patients and their families.
International Kidney Cancer Coalition
The International Kidney Cancer Coalition (IKCC) is an independent international network of patient organisations that focus exclusively, or include a specific focus, on kidney cancer. It is legally incorporated as a Foundation in the Netherlands. The organisation was born from a very strong desire among various national kidney cancer patient groups to network, cooperate and share materials, knowledge, and experiences.
Lymphoma Coalition Europe
Lymphoma Coalition Europe (LCE) is an umbrella organisation for lymphoma patient/carer groups in Europe. It has the following objectives:
- being the European source for lymphoma facts, statistics and data
- building capacity for lymphoma groups
- delivering projects and services with tangible benefits for patients
- improving awareness and understanding of lymphoma
- improving the lives and outcomes of lymphoma patients via influential lobbying/advocacy campaigns
Leukemia Patient Advocates Foundation
The Leukemia Patient Advocates Foundation (LePAF) is a patient-led non-profit foundation in Switzerland. Its mission is to improve the lives & survival of patients affected by Leukemia It is a platform for discussions & best practice sharing to Leukemia patient groups worldwide. The foundation collaborates with all stakeholders involved in research, treatment & care. It also acts as a platform for patient organisations – concentrating on educating, connecting & supporting patient group leaders. The foundation acts as a legal platform for self-sustained patient advocacy initiatives like the CML Advocates Network, MPN Advocates Network, CLL Advocates Network & Acute Leukemia Advocates Networks.
Lung Cancer Europe
LuCE (Lung Cancer Europe) is a lung cancer patient umbrella organizations, officially launched in 2013 to act as the voice of lung cancer patients, their families and survivors in Europe. The main objectives are the improvements of health related quality of life of patients, promoting the best possible treatment for any type of lung cancer and the equal access to care throughout Europe, the stigma reduction still associated with this disease and the increase of the survival rates. LuCE represents 19 European countries and counts 11 full members and 12 associate members and the main areas of action are: advocacy, awareness and education.
Myeloma Patients Europe
Myeloma Patients Europe (MPE) is an umbrella organisation of myeloma and AL amyloidosis patient groups and organisations across Europe. MPE currently has 41 members based in 29 countries. The mission of the organisation is to provide education, information and support to member groups and to advocate at European, national and local levels for the best possible research and equal access treatment and care. MPE is dedicated to improving the treatment, care and quality of life of myeloma and AL amyloidosis patients.
Melanoma Patient Network Europe
The Melanoma Patient Network Europe (MPNE) is an organically growing multidimensional network system of predominantly European Melanoma patients, carers and advocates and operates effectively across cultural and language barriers according to subsidiarity and shared principles. Our mission is to systematically address problems faced by the European Melanoma community in a constructive, result-oriented and evidence-based manner by providing platforms for collaboration and high-quality education.