The Rare Cancers Working Group (RCWG), 36 partner strong multi-stakeholder partnership, founded in 2008 and coordinated by the European Society for Medical Oncology (ESMO), brings together scientific societies, patient and research organizations, healthcare and education providers, and the industry.
Rare Cancers are not so rare. They are more common than you think.
24% of all new cancer diagnoses, including all paediatric cancers, are rare forms of the disease. With 650,000 new rare cancer diagnoses annually and around 5.1 million people in the EU living with a rare cancer, rare cancers are not so rare.
Despite the EU’s many achievements, the very nature of rare cancers adds a layer of complexity to overcoming the challenges they pose to patients, the researchers and the healthcare professionals who research and treat them. Thus, all policies at the EU level should to take into account the specificities of rare cancers to provide the best possible care to all patients.