Charlotte Roffiaen is a trained lawyer. She holds a degree in political sciences from Sciences Po in Paris, a law degree from the Sorbonne University, and a master’s degree in EU law from the Panthéon-Assas University in Paris.
Charlotte has been involved in advocacy since 2001, when she joined the Italian non-profit organisation Cittadinanzattiva and contributed to the creation and development of Active Citizenship Network (ACN), a European network of citizens and patient organisations. She directed ACN until 2008 and contributed to creating the European Charter of Patients’ Rights (2002), the European Patients’ Rights Day (2007), and to promoting the direct involvement of European citizens in the monitoring and improvement of their rights to health care. In 2008, Charlotte started advising non-profit organisations on their European strategy as an external consultant. The “Union nationale des associations agréées d’usagers du système de santé” (UNAASS), the platform representing patients and health care users in France (over 70 member organisations), counts among her clients.
Charlotte joined the Lymphoma Coalition (LC) as a Regional Director in June 2015 to set up, develop and manage LC European branch (LCE). LC is a global network of lymphoma patient groups, which gathers 67 member organisations from 45 countries and was incorporated in Canada in 2010. Charlotte works in close collaboration with LC 38 member organisations based in Europe, Turkey and Israel. She supports and coordinates the development of their advocacy and awareness raising activities, providing them with data on the lymphoma patient experience, knowledge and capacity building opportunities, communication tools, etc. She has also been developing LCE European advocacy strategy aimed at improving lymphoma patient’s access to care and at promoting the involvement of patient organisations in the design of clinical trials and in the approval of treatments.