EU General Data Protection Regulation
ESMO's objective: a balance between citizen data security and protecting the much-needed work of researchers
14 April 2016: ESMO today welcomed the European Parliament’s adoption of the EU General Data Protection Regulation, which it describes as being “crucial” for the future of cancer research.
Creating a uniform set of rules governing how personal data can be used in today’s digital age, the regulation aims to harmonise the different frameworks governing health research across the EU’s 28 member states. In particular, the regulation includes provision for a ‘one-time consent’ from patients allowing their data and tissues to be used for future research, which will also ensure the viability of bio-banking.