EU General Data Protection Regulation
ESMO's objective: a balance between citizen data security and protecting the much-needed work of researchers
25 July 2014: ESMO position paper: concern over the proposed revision to the EU General Data Protection Regulation. New legislative text will make it necessary to obtain consent from patients every time information about them is used in any research; this would make cancer research unworkable and ‘a burden to patients’.
“We are calling upon the EU to assure that all forms of public health research will survive and be able to function within the current safeguards ...without adding a nearly impossible burden of re-consenting each patient, every time, for every single project, which could irreversibly slow down the accelerated pace that cancer research has gained over the past decades.” Paolo Casali, ESMO Public Policy Committee Chair
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