Bettina Ryll

Patient Advocates Working Group Chair

Country

Sweden

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Bettina Ryll

Dr. Bettina Ryll is the current chair of the ESMO Patient Advocates Working Group (PAWG).

Dr. Ryll holds a medical degree from the Free University of Berlin, Germany and a PhD in Biomedical Sciences from University College London, UK.

After losing her husband to melanoma, she founded the Melanoma Patient Network Europe and developed a special interest in patient-centric clinical research, in particular, innovative trial designs and novel drug development concepts, such as MAPPS (medicines' adaptive pathways to patients), previously known as Adaptive Licensing. Lately, her focus has moved to sustainable healthcare models ensuring access to innovative therapies for cancer patients and incentives for sustainable innovation.

Dr. Ryll is involved in numerous initiatives promoting evidence-based advocacy. She is fascinated by the enormous potential and capacity of patient networks to both educate and support patients as well as to capture data at the primary data source – the patients themselves – and to generate evidence at a granular level non-accessible to outsiders.

Since 2015, Dr. Ryll has chaired the ESMO Patient Advocates Working Group, the first time this position has been held by a non-oncologist. The PAWG is responsible for the Patient Advocacy Track at the annual ESMO meeting, organises workshops of interest to the wider advocacy and medical community and has an advisory function for ESMO activities.

She has also been member of the ESMO Quality of Care Task Force since 2015.

ESMO 2017 Congress

"The ESMO Patient Advocacy Track addresses research topics that directly impact cancer care, obviously in addition to medical research. Demands for participatory medicine as well as financial constraints are changing the way oncology is practised today and have brought forward new fields of research, so we have sessions on patient outcomes research (Sunday) as well as health service research (Friday).

Today's cancer patients are increasingly knowledgeable and connected. Patient advocacy groups are playing a major role in this and now increasingly leveraging the power of those patient networks for evidence generation. The Patient Advocacy Track is a good opportunity for anyone interested in this type of work to find out more!"

Bettina Ryll

ESMO-2017-square

Bettina Ryll is the Patient Advocacy Track Chair of the ESMO 2017 Congress, taking place in Madrid, Spain (8-12 September 2017).
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